Additional Resources for Tackling the Challenges of MPS VI

The MPS Society offers a listing of people with various forms of MPS—and parents of
children with MPS—who are willing to be contacted for questions and discussions regarding MPS.

NORD (National Organization for Rare Disorders) also offers a networking program: individuals
with rare disorders such as MPS may register and request to be put in contact with another person who is affected by the same disease.

Log on to the first website devoted entirely to the MPS VI community and meet other people
with MPS VI, tell your story, or search postings by topic. All in one place! Register at www.mpsvi.net