Connect With the Maroteaux-Lamy (MPS VI) Community: Sources
of Support

When you or a loved one are confronted with a rare disorder like Maroteaux-Lamy (MPS VI), it's important to know that
there is a vibrant community that you can tap into for support, information, or any other needs that you may have.
We have compiled a list of organizations that provide support, information, or services to families and individuals touched
by MPS VI. The offerings of these organizations include:

• Formal support groups
• Local and national events bringing together people affected by MPS
• Internet chat communities
• Telephone support and information lines
• Services connecting families with sources of government-funded support
• In cases of significant need, direct financial support

The full listing of organizations may be found in the Resources web page.

Click here to connect with the MPS VI community.